Huntington’s Disease Clinical Research Congress 2025 – Day 1
HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.
This conference gathers hundreds of scientists, doctors, and industry representatives to discuss HD clinical research and care, with Day 1 focusing on the HD Community Research Day.
Demystifying Clinical Trials
The first session featured an interview-style panel with Arik Johnson, Chief Mission Officer at HDSA, speaking with Dr. Alexander Dalrymple, a neurologist at UVA, Dr. Daniel Claassen, CEO of HSG, and Frances Saldana, an HD advocate and President Emeritus of HDCare.
The panel aimed to explain elements of a study, such as protocols, endpoints, and the experience of participation.
- Speakers discussed what questions to ask when considering participation in a clinical trial.
- The session aimed to provide relevant information to families affected by HD.
Author's summary: HDBuzz attends the Huntington's Disease Clinical Research Congress.
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